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Hindsight: Bariatric Medicine Without Surgery is Like Nephrology Without Dialysis



One of the first articles I wrote after arriving in Canada as Canada Research Chair (Tier 1) in Cardiovascular Obesity Research and Management at McMaster University, was an editorial published in OBESITY SURGERY, in which I expressed my frustration about not having ready access to bariatric surgery for my patients, who desperately needed it.

In this article I noted that

“On accepting the position, I knew that I would be required to do some pioneering work: obesity or rather bariatric medicine is not a ‘recognized’ medical speciality. Rotation in an ‘obesity unit’ is neither a requirement nor of interest to the majority of medical residents. Most doctors’ understanding of obesity, its causes, its complications, and its management is not substantially different from that of a lay person. The well-known bias and discrimination that meets obese patients is also encountered in the commonly held views on the need for and delivery of medical and surgical treatment for this condition.”

“Within weeks of my arrival, referrals for patients began coming in, rapidly growing to over 20 per week. Within a few months, calls were coming in from across the province. One of the first patients I was called to see was a 41-year-old man weighing 436 kg, who had spent the last 9 months in an intensive care unit where he was being treated for intractable lymphedema and cellulitis of his lower extremities. The patient was living in his own ICU suite, while his caregivers were exploring the possibility of having him accepted for obesity surgery. It was already evident that this surgery could not be performed in Canada.”

“Within the first 6 months of my practice, I saw the heaviest people I had ever seen in my life. BMIs >50 kg/m2 were the rule rather than the exception. Most were below the age of 45, virtually none were currently employed, few had drug plans, and none had coverage for antiobesity medication. The majority had a history of childhood-onset obesity, all had significant co-morbidities including diabetes, reflux disease, sleep apnea, and debilitating back and knee pains.

All had significant histories of weight loss attempts, ranging from Weight Watchers and very low- calorie diets to rather questionable ‘medically supervised’ commercial weight loss programs. Many had also failed on pharmacotherapy. None had thus far been offered surgical treatment – the few who had tried to find surgeons in Canada soon discovered that there were only six surgeons performing obesity surgery in the province (population 9,000,000), none of whom were accepting referrals. Some patients were vaguely aware of a process for ‘out-of-province’ referrals, but none knew how to go about it or whom to ask for assistance.

Interestingly, despite the undeniable suffering and disability caused by their excess body weight, a seemingly large proportion of patients would not consider a surgical option because of the perceived risk. They were still hopeful that I would know of some magic bullet that could cure them of their condition (so were some of their referring physicians).”

“Clearly, surgery cannot be a solution for every patient with morbid obesity. Even with 1,000 operations a year, it would take over 200 years to operate on every morbidly obese patient in Ontario. So who should be operated upon, by whom, with what operation, and at what time point in the course of the disorder? Currently, there is little evidence from randomized controlled trials – the ‘gold standard’ of evidence-based medicine – on any of these issues. It appears that the basis for current practice is largely empirical, based on the expertise and judgement of individual surgeons. Yet, an important premise of ‘evidence-based’ medicine is to base care on the best available evidence. If empirical evidence is all we have, then this is what our standard of care should be based on – and no doubt, the empirical data in support of obesity surgery is impressive. It is clearly by far the most, if not the only, successful treatment for morbid obesity currently available.”

“Indeed, without the possibility of referring my patients to an experienced and dedicated obesity surgeon, I feel like I am practising nephrology with no access to dialysis or transplantation. There was only so much I could achieve with diet, blood pressure management, and immunosuppression in my patients with advanced renal failure. In the end, their survival depended on renal replacement therapy.

Similarly, there is only so much I can achieve with diet, exercise, and pharmacotherapy in my morbidly obese patients – ultimately resolution of their medical problems, if not their very survival, will depend on successful obesity surgery. In fact, from all that I have read and seen so far, obesity surgery for morbid (or should we call it malignant?) obesity appears far more successful in terms of improving quality of life, resolving co-morbidities, and promoting physical, mental, and socioeconomic rehabilitation than either hemodialysis or renal transplantation for patients with end-stage renal failure.”

“Surgery remains an important option for numerous ‘medical’ disorders: coronary bypass surgery for coronary artery disease, fundoplication for gastro-esophageal reflux, parathyroidectomy for hyper-parathyroidism, bullectomy for pulmonary bullous emphysema, knee replacements for osteoarthritis, kidney transplantation for renal failure, to name a few. Younger physicians perhaps forget that less than two decades ago, surgery was the treatment of choice for gastric and duodenal ulcers. All of these patients require long-term follow-up and management by internists or family physicians. Recognition of the important role of obesity surgery in the treatment of morbid obesity by internists and family physicians, and their commitment and dedication to the long-term medical management of patients who have undergone bariatric surgery, is long overdue.

For my part, I will undertake all that is necessary to establish bariatric surgery as an important and much needed surgical program at our university medical center.”

A lot has happened since I wrote these words.

Only days after I accepted my current position at the University of Alberta, the Ontario Government did announce funding for a bariatric program at McMaster – too late for me, I had already signed my new contract.

Today, Ontario does have its own Bariatric Network of “Pre-assessment” Clinics and bariatric Centres of Excellence. On the other hand, Ontario has yet to find a model that will appropriately look after the well over 2,000 patients who now receive bariatric surgery each year. There is still no non-surgical program that will treat obese patients early enough to prevent them from reaching a stage where they do need surgery. Nor is there a system in place to manage those who are not good candidates for or do not choose to undergo surgery.

Despite thousands of operations, there is still no real ‘academic’ bariatric program in Ontario – in 2010/11  there was barely a handful of peer-reviewed publications on bariatric care from all of Ontario – not even one paper per medical school – not surprising perhaps, given that there is not even a single chair in bariatric medicine or surgery at any of its five universities.

So, while more patients are now at least getting treatment, the field of bariatric medicine and surgery is still seeking form and structure in Ontario. To be fair, the situation is not that much better in other provinces.

Quebec has seen some improvements in access, but lags well behind Ontario in numbers. Nova Scotia has a fledgling program as does New Brunswick. Saskatchewan and Manitoba now perform a handful of surgeries a year. BC still has no recognizable bariatric strategy.

With about 600 surgeries performed across Alberta together with significant investments into a provincial obesity plan, Alberta, given the size of its population, may be slightly ahead of the pack – at least academically, it ranks number one, if the number of scientific publications on bariatric surgery is any indicator (12 paper in 2011, closely followed by Quebec with 10 articles, easily outranking all of Ontario with a single paper published in 2011).

Thus, eight years after I wrote this editorial, surprisingly little has changed when it comes to the recognition and importance of bariatric care and the need for greater investments and resources into researching the many open questions about the care of these patients.

Across Canada it is still far easier for someone with failing kidneys to receive dialysis than for someone with severe obesity to receive even minimally adequate medical or surgical treatment.

I wonder what the next eight years will bring to the field and to my patients – how much longer are they willing to wait?

AMS
Edmonton, Alberta

2 Comments

  1. Thank you for your ongoing efforts to increase access to appropriate care for the morbidly obese. Given that it is clearly among the greatest health concerns facing the first world, it is stunning how difficult it is to access treatment– or even find a doctor with some understanding. I myself had gastric bypass back when you wrote the original article– a little over eight years ago.
    I am happy to say it saved my life and I am still a healthy weight and living a much more enriched life. However, considering the easily measurable difference it made to my health (I was 31 years old, 371 pounds with sleep apnea, severe back pain, had an ulcer on my leg due to venous stasis, and already on part-time disability), it is shocking how difficult it was to get my surgery. This is exactly what the healthcare system is SUPPOSED to do: treat illness, save the patient’s life and restore health. Yet no one ever offered me this treatment. I had to ask for it, and practically beg my family doctor for a referral. And it was difficult for her to find someone to even refer me to. At the time, there was only one surgeon in BC performing bariatric surgery (my computer spell check has underlined the word bariatric– it’s not even recognized): Dr. Brad Amson. He had (and still has) a shocking waiting list, and after finally getting the referral, it took 15 months just to see him for a consultation. All told, from referral to surgery, it took four years. In that time, my health deteriorated considerably. If I had had timely access to bariatric surgery, I would not have the large, unsightly scar on my leg from the ulcer that developed. I developed sleep apnea while on the wait list.
    My first appointment with Dr. Amson was a new experience for me. It was the first time I felt comfortable in a doctor’s office. It was the first time I didn’t leave feeling ashamed. It was the first time I wasn’t treated like it was my fault or the result of my weakness. And most importantly, it was the first time I left feeling there was hope of actual treatment.
    I have to say, however, my success is largely because I myself have been so active in making sure I maintain my health. As you know, there is very little help for patients beyond the surgery. This is despite years of lobbying by Dr. Amson for proper funding for a bariatric centre of excellence. So the few who do receive surgery in BC are left with very little in place beyond support groups with other patients. He does have a nutritionist he works with, and I am grateful for her knowledge and support, but she is in Victoria and I am in Vancouver, so I cannot have long-term support through her. I tried a couple nutritionists here and found them woefully uninformed of my needs. I knew more than they did. Another important aspect of long-term success is regular activity, something Dr. Amson always preaches. Yet there is no one to help, no exercise physiologists to offer advice to the 400 pound patient who has difficulty even walking. But most importantly, there is no mental health support whatsoever. As you know, those of us who end up morbidly obese need mental health support as much as we need a bariatric surgeon. Unless we deal with WHY we ended up morbidly obese, we will certainly end up there again. The only reason I received this help is because, once again, I sought it out, and because I had coverage through my employer. Proper counseling is in my mind an essential part of treating morbid obesity, yet it is no where in the treatment plan in BC (if, as you observe, there is even a treatment plan).
    Obesity is such a complex disease that it seems so obvious that the treatment of it needs to be multi-disciplinary. How can something that seems so clear be so ignored? It is our number one (and growing) health concern, yet it is not on the radar of those making funding decisions in this country. My story is exactly the evidence needed: I now work full-time, I am healthy and I will live much longer and much happier. How many medical procedures produce results so easy to see? The system will pay for long-term treatment of diabetes, sleep apnea and heart disease (and disability benefits), but will not fund a procedure that can cure these problems? When an obese person asks me for advice, it is so disheartening to be honest with the uphill battle they face: not just the actual recovery of their health, but the battle for access to help. How can you tell someone it will take YEARS?
    I have observed lately that a number of my long-term peers are really struggling. Yet the only help available to us is each other. It seems ludicrous that there is no long-term assistance from the medical community. What other major medical procedures out there have such woefully inadequate follow-up?
    So thank you again for all your efforts to improve awareness and hopefully access to proper bariatric treatment. Given how often the medical community itself ignores our needs, it is refreshing to know that someone is working to improve this. On behalf of someone whose life has been saved and improved by bariatric surgery, know that it really is important work you are doing.

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  2. @Erin Madsen: I am very moved by your personal history with debilitating weight-related struggles and your amazing capacity to summon the courage and assertiveness to gain access to appropriate assistance and care. I am especially touched by your recognition of mental/emotional suffering and/or trauma and the desperate need for improved understanding (among professionals, patients, and general public) of the complex interrelationships between some forms of obesity and “issues” that our current biohealth system categorizes as “mental illness.” Cultural norms continue to blame individuals for complex dis-eases that have many social/environmental/genetic determinants, including life-long neurophysiological responses to early and/or chronic childhood traumas, deprivations, and neglected needs. We cannot continue to blame individuals, parents, and families when the social systems they (we) must live within cannot provide the kinds of supportive care, security, and critical assistance they (we all) need to raise healthy human beings. Thank you very much for sharing your courageous struggle. I hope you will continue to find/create supportive sources of care, compassion, understanding and strength. Good luck to you and to your “long-term peers” who are still “struggling.” They are lucky to have you as an empathetic friend!

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